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>Helping Kids: It’s so Thoughtful. It’s also Lucrative.

January 29, 2010

>Thoughtful House is a non-profit. Interesting, isn’t it? Also interesting is their revenue.

 In 2008, they brought in a total revenue of 2.8 million in donations. Equally fascinating is how much they pump back into helping the kids, considering they have assets of 5.29 million dollars. Yes, they give it all back to helping kids. And Wakefield received a salary of $270, 005. They have 1.89 million dollars in cash and 1.93 million in savings, just sitting there.

Interestingly, they get to call themselves a nonprofit, even though they sit on those assets because of this:

How does that compare to previous years? Let’s see.

In 2007,  they brought in a total revenue of $2.39 million. Assets were $4.5 mil.

Now here’s where it’s interesting. In 2008, Wakefield’s working 40 hours a week and getting compensation of $270 grand, but in 2007, he’s listed as the executive director, working 10 hours a week and not getting any compensation. Hmmmm.

In 2006, Thoughtful House brought in $2.91 million. Assets were $3.6 million. Wakefield’s listed as executive director, working the 10 hours per week and receiving no compensation.

In 2005, TH brought in $908 grand. Assets were $1.7 million. Here’s an interesting tidbit. He’s executive director; he’s there 40 hours a week, no compensation, but an expense account of $46 grand.

In 2004, TH brought in $1.7 million. Assets of $1.6 million. Now, I don’t know how they’re shifting things, moving his money around, but in 2004, Wakefield made $75 grand as executive director and worked 40 hours a week. It’s possible that he’s being funded by TH under research, which is not itemized out to individual payees.

The 2007 Annual Report for Thoughtful House shows that Wakefield is the research staff. He took no compensation for executive director. There were salaries of  $243,237 paid out to unnamed staff. $319,991 was paid to Medical Intervention for Autism out of Wilmette, Illlinois, for research services.

In all honesty, it looks like Thoughtful House takes in donations and does very little with those donations to help anyone.

Thoughtful House states its mission as: “Fighting for the recovery of children with developmental disorders through the unique combination of medical care, education, and research.”

They have nine clinical staff listed, as well as five research staff (Wakefield), and four administrative staff. Having looked through their non-profit tax returns, the only consistently paid staff is

Anissa Ryland, who consistently has been paid over $100,000 for her work.

The employee compensation amounts are not high enough to account for all of the above employees. I’m pretty sure they aren’t working for free, so are their compensations being covered under the fees-for-services. When you look at their page on the medical clinic, you can see that they are taking in money for medical care (which does not appear to be covered under the non-profit):

“Do you bill insurance?

No, due to the variability of insurance benefits we do not. We will, however, assist you by providing invoices with the appropriate coding and HCFA forms as needed to submit to your carrier for reimbursement. You are responsible for payment, which is due at the time of service.”

“What are your fees?

Consultations and follow-ups are billed from $290 to $390 per hour. This is pro-rated – that is, only the time you spend in the appointment is billed.”

And get this, if you don’t cancel 7 days in advance, they charge you half of that:

“What is your cancellation policy?

We have a strict cancellation policy because so many children are urgently seeking our attention and care. Whether the consult is via phone or in office, all new patient appointments require seven business days notice for cancellation and all follow up appointments require 48 business hours notice for cancellation. If timely notice is not given, there will be a charge equal to 50% of the scheduled consultation fee.”

Here’s what I don’t get: the folks at AoA and around rage about how little is done for autistic children to help them be cured. Thoughtful House takes between 300 and 400 dollars for an hour consult, and then the huge costs for lab work and tests with their service providers. Insurance is not accepted. And they take donations on top of that for their nonprofit, where they are sitting on 5 MILLION DOLLARS in assets. And the folks at AoA love Wakefield and Thoughtful House.  How do they justify this? Where is the evidence that TH and Wakefield are helping? Because it really looks to me like they’re preying on the vulnerable and the desperate.

Where are the investigations by the IRS? By the medical boards? I don’t get it. Where is the moral outrage that a non-profit would be sitting on 5 million dollars instead of using that to support these families? What the hell is going on here?

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30 Comments
  1. January 29, 2010 2:39 pm

    >I am hoping that yesterdays decision sparks the interest of the I.R.S..

  2. January 29, 2010 2:44 pm

    >Given that Wakefield has a documented history of clinical involvement in patient care when expressly forbidden to do so, I wonder if the same thing is going on in Texas?After all he's not licensed to practice in the States…

  3. January 29, 2010 5:49 pm

    >Don't forget Visceral in Bath…I'm sure the IRS and regulators have a long-standing interest in Wakefield, but have been biding their time. As the GMC action winds down, it could become easier to prosecute him in other jurisdictions.Incidentally, I have a new post on the "complaint" publicized by AoA on the "evilpossum" vaccine page; title "Attacking the Innocent to Defend the Guilty".

  4. January 29, 2010 5:55 pm

    >link?

  5. January 29, 2010 6:40 pm

    >My site is evilpossum.weebly.com

  6. January 29, 2010 6:58 pm

    >Getting a little OT here,and Wakefield aside,don't forget Thoughtful House isn't nearly as bad as Autism Speaks is. Now,there's a bunch of opportunistic,money-grubbing bastards for you.And unlike Thoughtful House,AS has not helped a single child recover.I am in a unusual pickle here.I have had great success with biomed,however as my autism has gone away,I am still very sick.I have been found to have all sorts of inborn errors of metabolism,on multiple genes,that only my DAN! bothered to look for.I have contacted a number of doctors at a number of university hospitals all over the country,who are working on such conditions,either asking either for help,or if I can come out and see them.These are big universities like UCDavis.Every single one of these doctors has suggested I go to Thoughtful House instead.When I write them back and tell them I am on SSI,and unable to work or pay for their services,they don't answer me.I have never bothered to get in touch with Thoughtful House,but it's fairly obvious they don't want to touch "charity cases". Nobody has explained to me what makes Thooghtful House different from the DAN! doctor down the road from you either.

  7. January 29, 2010 7:24 pm

    >Roger, Thoughtless house just hasn't gotten as big as autism speaks-yet. They are bilking families out of lots of money.How is that somehow better?

  8. January 29, 2010 7:41 pm

    >There's no evidence that TH has helped any kids. There's anecdotal evidence from adoring parents. Doesn't mean they weren't, but one thing is absolutely clear is that the parents have a huge psychological inducement at damn near 400 dollars an hour to believe that TH helped their kids.You wanna explain to me why you think posting inaccurate crap about me elsewhere and then coming over here and posting is somehow appropriate?You over at Doherty's:"Mainstream medicine is so ridiculosly anal retentative,and behind the times,about autism,that the per centage of parents that take it seriously is shrinking all the time.I'd wager most that do take reports like this seriously are neurodiversity parents,not much differernt than Kim Wombles or Kevin Leitch."

  9. January 29, 2010 8:26 pm

    >Oh Lord a mercy Roger you naughty little minx! Wakefield aside?! Darlin he's one a tha biggest reasons desperate folks are runnin ta thoughtful house! Good lord darlin y'all are postin so many contradictions an whatnot all over tha interwebz! You is healed..you is regressed..ya'll are on the special diet, tha special diet don't work for ya! Praise jesus an pass the suppository! Mr. Fussy poop has spoken! Problem is ya aint makin a hell of a lot a sense. thats for damn true!

  10. January 29, 2010 8:32 pm

    >Finally with talk of suppositories CAoA is at a level where I can participate properly…. for amongst all the science and all the Facts lies the real battle for hearts, minds and bottoms…

  11. January 29, 2010 8:37 pm

    >Socrates darlin! I like the cut of your jib! Don't that just bounce my bosoms!

  12. January 29, 2010 9:44 pm

    >Let's sic the IRS on him. I think Mr. Wakefield would look good in an orange suit and flip-flops.

  13. January 29, 2010 9:55 pm

    >Roger, ya never cease to amaze Louise and me. Why, we cain’t hardly wait to see the new posts of yours to see where ya are gonna go with it. Ya rewrite history better than our friend with the did the diet-didn’t do it, had seizures-didn’t—had cerebral palsy-didn’t, all three kids vaccinated- youngest never vaccinated. One thing we are learnin as we read ya folks over there on the woo-woo side of things is that ya are forever reinventin yerselves and payin no never mind when ya get caught. Don’t even put a hitch in yer gait is what I am sayin, and I gots to tell ya, I really think it should hitch ya up some, slow ya down, and give ya some pause.Ya write over at Doh’s (guess ya off yer baby formula now?):“I am still very sick from GI, metabolic,and immune problems,but two years into biomed,and chelation,I am no well on the way to losing my autism diagnosis.This from someone with an ATEC score of over 160 before they started.”Reckon we’ll allow you’re still very sick, that’s for true. Now tell me, is the autism thing a self diagnosed thing? Ya fillin out Rimland’s form on yerself and deciding whether ya are better or not and ya’ve decided ya are tired of the autism schtick? I mean ya tried on the PDD, member that?“I guess I am somewhat unusual.I recently received an official diagnosis of PDD-NOS,as an adult.As a child,I receive a number of different diagnoses,both of psychiatric,and of developmental disorders.As a child,I basically had classic Kanner autism,but without retardation.I also have multiple lifelong autoimmune issues.I have a rare chronic meningitis syndrome.I have a past history of childhood interstitial lung disease and pneumonia.I have inflammatory bowel disease,recurring labryinthitis,rheumatic heart disease,and severe reactive arthritis.” http://groups.google.com.my/group/alt.support.autism/browse_thread/thread/be0078d8fd11590eOf course, once ya got on that mito group, months before ya ever set foot on AoA or the autism/mercury, ya weren’t braggin on the PDD. Nope then you were HFA and atypical, weren’t ya?Ya are consistent about havin a regression in 2007, but ya is gonna have to explain how ya can have a regression that ya say takes ya out for a year and a half but still lets ya post on your music google groups, over 300 posts from 07 to 08. Don’t sound like a regression to me, buddy-o.

  14. January 29, 2010 10:12 pm

    >Speaking for myself…It's not unusual to have more than one ASD diagnosis if you are high-functioning, especially if you are older: I have more than one (HFA and AS). It's also not unusual for older adults with a high-functioning ASD to have received multiple diagnoses since HFA/AS was unheard of and not diagnosed until recently.It's also not unusual in psychiatry to get more than one diagnosis that really means the same thing: PTSD, borderline personality disorder, Complex-PTSD (I've been given all three) are all on the same spectrum of "trauma disorders."Psychiatry is a very fuzzy area of medicine, at best. Different doctors have different theoretical bases and have different opinions about psychiatric disorders since there is no test you can do and diagnosis simply relies on symptoms.

  15. January 29, 2010 11:02 pm

    >Stephanie, darlin,Not what I'm talkin bout. I understand that folks can wander through the medical and psychiatric system collectin diagnoses. Them head shrinkers pin em on and off as they work at figurin out folk's issues. We got no fight with that, that's for sure. Why our friend Kim has recounted how that's happened with her bright boy.Ain't what I'm talkin bout. Nosirree. Not what I'm sayin at all. I'm accusin Roger of bein light on the truth tellin is what I'm doin, sweetie. A man in the midst of the regression he insists he suffered from managed to do things he said he wasn't rightly capable of. Done spent the last year badmouthing folks with diagnoses of pdd and asperger's as not bein autistic, yet that's the first thing he said he had when he started talkin bout autism.Man's story changes more than he has bowel movements is what I'm sayin. Why take a gander at Louise's Prune Belly story, and you'll get a sense of what we're gettin at.

  16. January 29, 2010 11:57 pm

    >I've heard from a little bird that ThoHo may be a target of certain investigations interested in the possible presence of a certain non-licensed in the US fellow during the practice of medicine. There's a funny thing going on, for example, with their server. But I got no more to say on that. Well, except this: there's a clear pattern of unethical behavior here. Why would it have changed just because someone moved from the UK to Texas?

  17. January 30, 2010 4:09 pm

    >ThoHo isn't about helping kids. It's about making the parents feel like they are doing something for their kids.

  18. January 30, 2010 5:09 pm

    >Another reference to the psychology of this situation…We should get together and call ourselves an institute

  19. January 31, 2010 4:33 am

    >Thank you, Socractes. I now have Paul Simon stuck in my head….:D

  20. January 31, 2010 11:34 pm

    >Corina, at least Paul's a little guy.OK, my WV is "putdoo."

  21. February 2, 2010 7:43 am

    >My thought on this vein, also posted at "Comet's Corrner":It's strange that Wakefield went all the way back to the UK when he wasn't planning to attend a hearing. Might it be because he had advance notice the US courts might come looking for him?Also note that US courts cannot try him in absentia.

  22. February 2, 2010 8:44 pm

    >Nothing personal,it's just that I don't like it when people cling so much to any one type of dogma,be it antivaxer woo,or mainstream science.Both sides are pretty anal retentive.You're the one who is always touting mainstream science.

  23. February 2, 2010 9:08 pm

    >Thelma,it is possible to have a serious regression,that can cause severe autism symptoms,and leave your intelligence intact.This is a big hallmark of autism of either mitochondrial or metabolic disease.Let me quote you what Dr.Marvin Natowicz says about autism of metabolic or mitochondrial nature.

  24. February 2, 2010 9:09 pm

    >Dr. Marvin Natowicz is a neurogeneticist previously practicing at Mass General Hosp., Boston and the Eunice Kennedy Shriver Center in Waltham, MA where he was the Medical Director of Genetics. He is now a member of the metabolic team at the Cleveland Clinic. Natowicz is specifically interested in metabolic disorders in autism and, in a 1999 Boston based "LADDERS" lecture, enumerated a number of "red flags" which invite investigation into underlying metabolic (including mito) disease in autism:Red flags requiring further scrutiny by metabolic clinicians:1. The autism is not classic and/or the diagnosis is not straightforward when observed by credible specialists. Examples of this are children who may score as autistic or PDD-NOS by DSM-IV criteria because they have language, social and behavioral deficits. However, professionals often say that they have "too much eye contact" or a certain "eye quality" or are "too social" even though their social skills are below expectations for developmental age. Diagnosticians use terms like "atypical autism" or "features of atypical autism," or they may say, it's "not quite autism" but we're not sure what it is either. This is a "squishy" diagnosis.You got that.?

  25. February 2, 2010 9:10 pm

    >2. Developmental regression: Because some 25-33% of autism is regressive in the first year of life, some clinicians discard these kids as unworthy of further scrutiny. Loss of previously attained skills is always significant and should be carefully regarded by medical professionals. Video documentation is very helpful.3. Neurological regression: This might manifest as loss of muscle strength or physical ability, easy fatigue or lethargy. Be on the look out for intermittent loss.4. Seizures: Some 33% or more of children with autism are expected to show EEG abnormality or seizure activity in their lifetime so many clinicians discard this very important marker for metabolic stress. 5. Food intolerances or avoidance: If foods cause changes in neurological status, this is significant for metabolic disorder. A child who has typical or near typical muscle skills but becomes frankly ataxic upon eating a certain food, may have a "leaky form" or partial defect associated with a given metabolic disorder. For example, children with less advanced maple syrup urine disease (MSUD) can become clumsy after eating foods high in branched chain amino acids (generally proteins). The disorder may be more apparent under circumstances where there is a greater catabolic demand on the body such as during fasting (i.e. overnight) or infection. For this reason, first in the AM urine is often preferred for analysis. This underscores the need to collect urine samples during times of obvious unbalance or muscle loss.6.Given the proper educational, behavioral and therapeutic supports, children with autism are capable of learning.When children do not learn (or lose cognitive skills), one may first question whether the child is being taught appropriately. If the answer is “yes” or if the educational piece is corrected and the child still does not make progress, metabolic scrutiny is often appropriate. When observed together with one or more other "red flags," lack of learning in autism demands scrutiny.7.Family history:a second affected sibling cries out for metabolic scrutiny.I would venture to add here that families who have a history of miscarriage along with an affected child,should demand further metabolic work up in their child.8.Unusual findings on physical examination including: *growth retardation or excessive growth *small head circumference esp. if this declines over time relative to over-all-size *significant motor dysfunction *atypical biochemical findings [examples include but not limited to low blood CO2, high blood ammonia, liver function abnormalities, creatine phosphokinase (CPK) abnormalities indicative of muscle injury, etc.. Some clinicians feel that values must be at least 2 standard deviations from the mean in order to be significant. Most agree that flagged values (i.e. any value outside the normal reference range) warrent a repeat blood draw for validation.]There is a lot of overlapping in physical findings in autism of a primarily mitochondrial nature,and autism of a nonmitochondrial metabolic nature,like I have. Sometimes it takes a while,with a lot of testing and false leads to finally get to the answers. Sometimes like I do,you can have a syndrome of inborn errors of metabolism on multiple genes,that can cause secondary mitochondrial disease.

  26. February 2, 2010 9:16 pm

    >And no,quoting this isn't "touting mainstream science", because "mainstream science" has the same view of autism that neurodiversity does.As far as "mainstream science" is concerned autism is an untreatable neuropsychiatric disease,with the classic "triad of impaiments".

  27. February 2, 2010 10:33 pm

    >Roger,I'm going to leave aside your comments directed for Thelma for her to work through. I passed them along to her and she said she'd need to get ahold of her Wild Turkey and her bud Louise to get fortified to wade into your stuff. You show an incredible ineptitude towards what mainstream science has to say about autism. You regurgitate the talking points of the woo brigade who cloak their rhetoric in appeals to authority and irrelevancies and verbosity, all to mask their empty rhetoric. Just because a bunch of folks on internet forums have decided to reformulate autism into some bizarre mix of mercury and other heavy metal poisonings, vague mitochondrial disorders and methylation defects, among the other assorted nonsenses (I'm not saying these things in themselves are nonsense or without merit; I'm saying they are not ASDs) doesn't mean they've got the lock on the truth. They do not. What they have are some serious psychological issues, a wee spot of hypochondria, some really butchered ideas on anatomy and physiology as well as pathologies, and in some cases what looks a lot like munchausen by proxy.Mainstream science is not dogmatic except in its adherence to the scientific method and its acknowledgement of the triad of mental clouds (let's call it that) of confirmation bias, affect heuristic and availability heuristic.Mainstream science, contrary to your belief system does NOT hold autism to be "an untreatable neuropsychiatric disease,with the classic "triad of impaiments"." While you're stuck in your rotating wooville of choices for what you and the rest of the holders of the biomedical perspective perceive autism to be, science marches on, investigating multiple areas of interest in autism. It is a neurological condition. Negative symptoms can be mediated. There are, as there are in many people, autistics with other physiological conditions that are not related. Your need to conflate these things with autism says more about your inability to distinguish good science by those who research autism from the garbage the quacks trying to sell folks woo are promoting.You really either have no idea of what mainstream science holds, what various proponents of neurodiversity hold, or you are so completely two dimensional as to need to flatten the world out into two separate groups. It's easier that way, I suppose, if you argue against false positions. I mean, why let reality and objective truth get in the way?

  28. February 2, 2010 10:48 pm

    >Well, hell's bells, Roger, ya got yourself a blog, I hear. Hope ya have a right high time postin about your issues in detail over there.Got myself fortified with the Wild Turkey, hog tied my gal Louise into watchin this here this here documentary called Here Be Dragons that Kim makes her students watch. All in preps to readin the frenzy of comments here. Wanted to be sure to give ya the attention ya deserve. Ya be doin a data dump, hon, and thinkin it's one of your special bm's, ain't ya? Ya go from PDD, to all them got no muscles, but ain't actually got the syndrome that doesn't have the muscles, to your classic tale of regression. Oooh, but now it left ya intact, it did. And if I read the data dump I'll know for true that ya can keep on keepin on doin stuff when ya are in a regression. Seem to recall ya talkin bout how that regression messed your head up, ya know. Uh-huh. I could go a diggin again, but Louise is of the opinion it would be akin to spankin ya, and we know how ya got a hankerin for the spankin. Ya will take a verbal spankin if ya cain't get the true kind. Ya got a story on ya full of more shimmy and shakes than my gal Louise has. Hell ya is bouncing the bs higher than Louise can bounce her bosoms, is what I am sayin, and that's alot. Ya got a regression that ya swear up and down all over god and country that leaves ya headbuttin and elopin but ya can get ya 300 posts on. Sure ya can, Roger. Uh-huh. Sure ya can. Ya got more twists and turns that ya got intestinally, ifn ya ken me, and much like your mythically absent abdominal muscles, ya story ain't holdin up. Now, reckon ya might not be aware of it, reckon that's possible. We all got blinders is what I'm sayin. All got needs, all got problems. Ya have a might few more than the average bear, though, and mayhaps a trained professional to help ya weed through some of them problems is in order.

  29. February 2, 2010 10:56 pm

    >As I said in my first blog post,I think it's high time metabolic disease with "features of autism" are separated from autism itself.Defects in specific genes are not woo.

  30. February 2, 2010 11:29 pm

    >Roger darlin! What in tha hell was that last comment supposed ta mean? Ya come here all fired up with yer quotes an such..yellin about triads or threesomes an god knows what all..I don't know whether you is comin or goin! and thats sayin a lot seein what I do for a livin! I reckin My gal Thelma is right! You is bein a naughty naughty boy Roger! Boy howdy ya is! Thankin about spankin..a little pump to tha rump..a tweak to tha cheek and whatnot. Thats for damn true!

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